Following the deaths Charlie & Kian Jones from a congenital heart defect (CHD) called Hypoplastic Left Heart Syndrome (HLHS), the Charlie Jones Foundation was established.
They endeavour to raise awareness into HLHS and to also fundraise for our local PICU.
CHD's a the number one killer in babies and many often go undetected until the child dies and a post mortem is carried out. There is hardly any research into heart defects in this country yet the Government plough money into cancer research when statistics show that the highest number of infant and child deaths is due to a heart defect and not cancer.
We, the undersigned, are requesting for more research and funding into the causes of CHD's so that in the future less children will die from them. It will also bring a little comfort to the parents of those CHD children with their angel wings to know a cause or reason.
We do this in memory Charlie & Kian Jones and all the other CHD angels.
The Support Research and Funding into Heart Defects petition to UK Government was written by Charlie Jones Foundation and is in the category Health at GoPetition.