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Petition Tag Rare disease

Establish a body to support Rare conditions in Australia

A condition (disease, syndrome or disorder) is classed as rare if it affects less than 1 in 2000 people. There… read more

Demand Funding for Life-Saving Treatment of PNH

AUSTRALIAN CITIZENS ONLY PLEASE Paroxysmal Nocturnal Haemoglobinuria is a very rare, devastating and often fatal disease, affecting 70 Australians. There… read more

In Support of Canadian Rare Disease Plan and Orphan Drug Policy

Canada is the only developed country in the world that does not have a Federal Healthcare policy for persons with… read more

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