Help us fight for Alex

Alex has been diagnosed with a very rare syndrome called the Pierre Robin Syndrome. Alex has under gone countless surgeries leaving his little body weak, uses a special feeding tube inserted within his bowel that he is fed from for 19 hours out of 24 hours. He has had a trachiostomy tube inserted in order for him to breathe. Alex suffers daily and we would like to raise money for his quality of care, medical equipment and medicine that he so desperately needs on a daily basis. If we cannot allocate a nurse/carer or raise funds to fund his care, alex will be placed in a medical home. Alex has two big sisters called Alexi and Ava. They are aged 9 &5. Alexi herself was diagnosed with craniostonisis which basically means that her skull reversed and switched around. The only help that has ever been offered was through Jack &Jill foundation who offered to support Alex for 24 hours a month which is not enough for the care this little hero needs and deserves. We have completed 18 months of training to care for him at home. Unfortunately I  have to leave my home after 7 years to be closer to the hospital as alex holds his breath and requires oxygen & cpr. Thank you all for your support and best wishes. Our super hero is famous and loves giving high 5's, Pinky promises and lots of kisses...love to u all xxxx