Help Joint Hypermobility Syndrome in Fife
- raise awareness in fife
- United Kingdom
Joint hypermobility syndrome needs to be distinguished from other disorders that share many common features, such as Marfan syndrome, Ehlers-Danlos Syndrome, and osteogenesis imperfecta.
In the last couple of years collaborations of experts in connective tissue disorders formally agreed that there was little distinction between Hypermobility Syndrome and Ehlers Danlos Syndrome and that they are in fact the same disorder. Information on this can be found in an article titled "The lack of clinical distinction between the hypermobility type of Ehlers–Danlos syndrome and the joint hypermobility syndrome (a.k.a. hypermobility syndrome)".
Generalized hypermobility is a common feature in all these hereditary connective tissue disorders and many features overlap, but often distinguishing features are present that enable differentiating these disorders.
We, HMS Sufferers in Fife, are calling on NHS Fife to bring more information, appointments and a better service to hospitals/clinic's/GP Surgeries to help Joint Hypermobility Syndrome sufferers in fife.
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The Help Joint Hypermobility Syndrome in Fife petition to raise awareness in fife was written by lyndsay allan and is in the category Health at GoPetition.