Establish a body to support Rare conditions in Australia - Petition - Sign this petition here - Signature page

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Establish a body to support Rare conditions in Australia

235 Signatures

Published by Meagan Cross on May 23, 2009

Category: Health

Region: Australia

Target: Australian government

Web site: http://www.mollysvoice.org/index.php?id=rarediseas...

Petition text:

I demand a strategy for establishing an organisation in Australia to support rare disorders including supporting policy.

I want a group established to engage at a Federal level to provide for rare disorders.

Support for research into rare conditions is paramount as is a mechanism for fundraising, education, advocacy and parent/carer support

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