http://www.gopetition.com/signatures/provide-for-neurology-patients-left-without-care.html Online petition signatures en-us Mon, 6 Apr 2026 09:09 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://www.gopetition.com/signature/locate/22255327?utm_medium=rss This is the main centre of excellence and expertise. His experience is invaluable and indispensable.

]]> Wed, 20 Jun 2018 11:26:11 UTC 22255327 https://www.gopetition.com/signature/locate/22255315?utm_medium=rss Wed, 20 Jun 2018 10:56:24 UTC 22255315 https://www.gopetition.com/signature/locate/21950731?utm_medium=rss Thu, 21 Dec 2017 12:48:15 UTC 21950731 https://www.gopetition.com/signature/locate/21651020?utm_medium=rss Wed, 13 Sep 2017 06:37:06 UTC 21651020 https://www.gopetition.com/signature/locate/21591634?utm_medium=rss Children's Mercy Hospital. With no other neurologist in the department, much less the region, as talented and effective as he, many of the children he treated are left in precarious and even life-threatening situation.
This petition is to request that patients and/or their replacement neurologists be permitted access to Dr. A to ensure the safety and health of the children

]]> Sat, 19 Aug 2017 11:35:36 UTC 21591634 https://www.gopetition.com/signature/locate/21555290?utm_medium=rss We are unsure of why Dr. Aalbers left CMH.
He needs to be allowed to practice in the area again. It is cruel to leave so many families / children without the top notch care they need and deserve. We worry that none of the doctors at CMH will have the expertise and knowledge to continue to program our daugher's DBS system, It is scary to have this technology implanted into your child and then not having someone who is able to provide excellent medical care/programming for your child. Not sure what went wrong at CMH, but we need to be able to see Dr. Aalbers.

]]> Thu, 3 Aug 2017 11:09:12 UTC 21555290 https://www.gopetition.com/signature/locate/21536331?utm_medium=rss Thu, 27 Jul 2017 12:58:20 UTC 21536331 https://www.gopetition.com/signature/locate/21493658?utm_medium=rss Sat, 8 Jul 2017 08:27:18 UTC 21493658 https://www.gopetition.com/signature/locate/21466433?utm_medium=rss He was amazing with my child! So understanding, and always explained everything to us, and took his time doing so. We were so lost and had so many questions until we met Dr. Aalbers! He has truly helped my daughter so much!

]]> Thu, 29 Jun 2017 01:10:52 UTC 21466433 https://www.gopetition.com/signature/locate/21465568?utm_medium=rss Wed, 28 Jun 2017 08:57:31 UTC 21465568 https://www.gopetition.com/signature/locate/21461663?utm_medium=rss Wed, 28 Jun 2017 02:40:59 UTC 21461663 https://www.gopetition.com/signature/locate/21460150?utm_medium=rss Tue, 27 Jun 2017 12:18:46 UTC 21460150 https://www.gopetition.com/signature/locate/21445370?utm_medium=rss Mon, 19 Jun 2017 03:54:20 UTC 21445370 https://www.gopetition.com/signature/locate/21443219?utm_medium=rss Dr. Aalbers is the only DBS programmer to understand Kernicterus kids and family needs!

]]> Sun, 18 Jun 2017 04:07:01 UTC 21443219 https://www.gopetition.com/signature/locate/21442749?utm_medium=rss Sun, 18 Jun 2017 10:39:56 UTC 21442749 https://www.gopetition.com/signature/locate/21432687?utm_medium=rss Fri, 16 Jun 2017 01:18:00 UTC 21432687 https://www.gopetition.com/signature/locate/21432111?utm_medium=rss Dr. Aalbers saw Grace on 09/30/16 just a few weeks after being diagnosed with kernicterus. He along with Dr. Shapiro were absolutely amazing in explaining everything to us about our daughter's condition.

]]> Thu, 15 Jun 2017 11:41:59 UTC 21432111 https://www.gopetition.com/signature/locate/21431781?utm_medium=rss Thu, 15 Jun 2017 10:41:05 UTC 21431781 https://www.gopetition.com/signature/locate/21430829?utm_medium=rss Thu, 15 Jun 2017 07:36:46 UTC 21430829 https://www.gopetition.com/signature/locate/21429941?utm_medium=rss Thu, 15 Jun 2017 03:28:41 UTC 21429941 https://www.gopetition.com/signature/locate/21429704?utm_medium=rss Thu, 15 Jun 2017 02:28:09 UTC 21429704 https://www.gopetition.com/signature/locate/21429432?utm_medium=rss Thu, 15 Jun 2017 01:38:14 UTC 21429432 https://www.gopetition.com/signature/locate/21429173?utm_medium=rss Thu, 15 Jun 2017 12:53:31 UTC 21429173 https://www.gopetition.com/signature/locate/21427087?utm_medium=rss Dr. Aalbers is an amazing neurologist who cares deeply about his patients. I'm very upset with CMH for handling it this way. My child sees 4 or 5 specialists at CMH.Dr. Aalbers was the doctor who gave us the most hope. I am not going to allow my son to just be assigned a doctor. He's been with us from the beginning of Blake's devastating injury. I'm so upset by the letter we received just telling us he was gone and that we would be reassigned. I will look elsewhere if that is the case.

]]> Thu, 15 Jun 2017 05:34:40 UTC 21427087 https://www.gopetition.com/signature/locate/21426801?utm_medium=rss Thu, 15 Jun 2017 04:04:41 UTC 21426801 https://www.gopetition.com/signature/locate/21426589?utm_medium=rss The can only thing that will relieve him of his misery is when Dr. Albers performs anal botox. This allows us to temporarily insert a rectal tube, and as his rectum eventually becomes less tight, he begins to pass gas, stool, urinate and be able to breathe. I can't imagine a more tortururous situation than to have one's rectum so tight they can't do something so simple as to pass gas. My son requires anal botox every 3 months. I have asked several of his physicians, "Who will perform this for him if not Dr. Albers?" It is a specialized form of botox administration. No one has been able to provide me with any answers. This is very distressing to the parents of a child who has already spent close to two years in the PICU. I implore you to try to have some level of compassion as to how Dr. Albers' treatments have not only improved, but assisted in saving our son's life.........not to mention, the spiritual, mental, and emotional upliftment it provides to our entire family to see Eryith comfortable, enjoying life (as an 8 year old should) with his brother and sister, and out of the PICU. Thank you for your consideration.

]]> Thu, 15 Jun 2017 03:14:58 UTC 21426589 https://www.gopetition.com/signature/locate/21426586?utm_medium=rss Thu, 15 Jun 2017 03:14:42 UTC 21426586 https://www.gopetition.com/signature/locate/21425888?utm_medium=rss Thu, 15 Jun 2017 12:46:43 UTC 21425888 https://www.gopetition.com/signature/locate/21425873?utm_medium=rss Thu, 15 Jun 2017 12:42:37 UTC 21425873 https://www.gopetition.com/signature/locate/21425848?utm_medium=rss Thu, 15 Jun 2017 12:38:10 UTC 21425848 https://www.gopetition.com/signature/locate/21425509?utm_medium=rss On behalf of McCarthy family. Maddy deserves the best care available.

]]> Wed, 14 Jun 2017 11:33:37 UTC 21425509 https://www.gopetition.com/signature/locate/21425275?utm_medium=rss Dr. Aalbers is a talented and passionate neurologist who invests intense thought and consideration into the care of his patients. He is also a uniquely trained and talented physician who fully engages in the surgical process for DBS. His skill and expertise in programming the DBS unit post surgery is rare and uniquely effective for kids with Kernicterus. His level of care, skill, talent, and intuition for those with Kernicterus is not easily replaced. His presence at this hospital attracted patients from around the US and world, and children depend on his presence for their well being and future. The children depending on Dr. Aalbers have been left without the care, skill, and intuition of Dr. Aalbers. Those children are, at minimum, stalled in their progress, at worst, placed at risk of a highly specialized and expensive DBS unit being limited by the absence of effective follow up care.

]]> Wed, 14 Jun 2017 11:00:45 UTC 21425275 https://www.gopetition.com/signature/locate/21424661?utm_medium=rss Wed, 14 Jun 2017 09:27:45 UTC 21424661 https://www.gopetition.com/signature/locate/21424302?utm_medium=rss Wed, 14 Jun 2017 08:34:09 UTC 21424302 https://www.gopetition.com/signature/locate/21423931?utm_medium=rss Patients like Lexi need this doctor's expertise. Allow him to see these patients, either through you or some other arrangement!

]]> Wed, 14 Jun 2017 07:05:12 UTC 21423931 https://www.gopetition.com/signature/locate/21423762?utm_medium=rss Wed, 14 Jun 2017 05:48:39 UTC 21423762 https://www.gopetition.com/signature/locate/21423618?utm_medium=rss Wed, 14 Jun 2017 04:53:27 UTC 21423618 https://www.gopetition.com/signature/locate/21423613?utm_medium=rss We have had 3 practitioners in less than a year. The internal politics of the department are getting in the way of the care of our daughter.

]]> Wed, 14 Jun 2017 04:52:02 UTC 21423613 https://www.gopetition.com/signature/locate/21423593?utm_medium=rss Wed, 14 Jun 2017 04:46:13 UTC 21423593 https://www.gopetition.com/signature/locate/21423502?utm_medium=rss Wed, 14 Jun 2017 04:16:36 UTC 21423502 https://www.gopetition.com/signature/locate/21423140?utm_medium=rss Wed, 14 Jun 2017 01:57:42 UTC 21423140 https://www.gopetition.com/signature/locate/21422912?utm_medium=rss Wed, 14 Jun 2017 01:12:57 UTC 21422912 https://www.gopetition.com/signature/locate/21422743?utm_medium=rss Wed, 14 Jun 2017 12:44:13 UTC 21422743 https://www.gopetition.com/signature/locate/21422353?utm_medium=rss Bring back Dr Aalbers!

]]> Wed, 14 Jun 2017 11:53:36 UTC 21422353 https://www.gopetition.com/signature/locate/21422226?utm_medium=rss Wed, 14 Jun 2017 11:41:46 UTC 21422226 https://www.gopetition.com/signature/locate/21422142?utm_medium=rss Wed, 14 Jun 2017 11:32:19 UTC 21422142 https://www.gopetition.com/signature/locate/21418927?utm_medium=rss Wed, 14 Jun 2017 06:10:13 UTC 21418927 https://www.gopetition.com/signature/locate/21418644?utm_medium=rss Every child desrve's the right to reach their potentional. Who are we to stunt that growth? My nephew is an amazing young man. He is all heart. And it takes all heart to have the courage to fight as hard as he and his parents have had to for things people take for granted evey day.

]]> Wed, 14 Jun 2017 05:34:00 UTC 21418644 https://www.gopetition.com/signature/locate/21418466?utm_medium=rss Wed, 14 Jun 2017 05:10:10 UTC 21418466 https://www.gopetition.com/signature/locate/21418329?utm_medium=rss Wed, 14 Jun 2017 04:51:14 UTC 21418329 https://www.gopetition.com/signature/locate/21418200?utm_medium=rss Wed, 14 Jun 2017 04:33:41 UTC 21418200 https://www.gopetition.com/signature/locate/21418179?utm_medium=rss Dr Aalbers was the first doctor we had that really looked to solve problems and not just use a temporary fix. We have had multiple successful botox sessions because he collaborates with her PT. We so very sad Dr Aalbers is no longer at CM. Our daughter has had several doctors and all have them have been top notch, but honestly losing him was the biggest blow. He had done so much for our daughter's tone to allow her to progress physically which is her largest hurdle. Please bring Dr Aalbers or find a suitable replacement.

]]> Wed, 14 Jun 2017 04:30:49 UTC 21418179 https://www.gopetition.com/signature/locate/21415584?utm_medium=rss Wed, 14 Jun 2017 12:08:46 UTC 21415584 https://www.gopetition.com/signature/locate/21415327?utm_medium=rss Dr. Aalbers was patient, kind and explained everything to our family step by step. His astute attention to detail is key for kids like mine with very specific needs. Bring him BACK!

]]> Tue, 13 Jun 2017 11:47:20 UTC 21415327 https://www.gopetition.com/signature/locate/21414632?utm_medium=rss Tue, 13 Jun 2017 11:10:42 UTC 21414632 https://www.gopetition.com/signature/locate/21414531?utm_medium=rss Tue, 13 Jun 2017 11:03:30 UTC 21414531 https://www.gopetition.com/signature/locate/21414414?utm_medium=rss Tue, 13 Jun 2017 10:54:57 UTC 21414414 https://www.gopetition.com/signature/locate/21414277?utm_medium=rss I am Blue Illif's great -aunt .

]]> Tue, 13 Jun 2017 10:45:50 UTC 21414277 https://www.gopetition.com/signature/locate/21413967?utm_medium=rss Tue, 13 Jun 2017 10:24:45 UTC 21413967 https://www.gopetition.com/signature/locate/21413903?utm_medium=rss Tue, 13 Jun 2017 10:20:34 UTC 21413903 https://www.gopetition.com/signature/locate/21411930?utm_medium=rss Tue, 13 Jun 2017 09:17:42 UTC 21411930 https://www.gopetition.com/signature/locate/21411873?utm_medium=rss Tue, 13 Jun 2017 09:08:22 UTC 21411873 https://www.gopetition.com/signature/locate/21411872?utm_medium=rss Tue, 13 Jun 2017 09:08:21 UTC 21411872 https://www.gopetition.com/signature/locate/21411758?utm_medium=rss Tue, 13 Jun 2017 08:48:51 UTC 21411758 https://www.gopetition.com/signature/locate/21411678?utm_medium=rss Tue, 13 Jun 2017 08:33:48 UTC 21411678 https://www.gopetition.com/signature/locate/21411529?utm_medium=rss Please do not let hospital politics take priority over the well-being of so many children.

]]> Tue, 13 Jun 2017 07:59:36 UTC 21411529 https://www.gopetition.com/signature/locate/21411516?utm_medium=rss Tue, 13 Jun 2017 07:55:18 UTC 21411516 https://www.gopetition.com/signature/locate/21411506?utm_medium=rss Tue, 13 Jun 2017 07:54:01 UTC 21411506 https://www.gopetition.com/signature/locate/21411493?utm_medium=rss Tue, 13 Jun 2017 07:51:03 UTC 21411493 https://www.gopetition.com/signature/locate/21411423?utm_medium=rss Tue, 13 Jun 2017 07:31:22 UTC 21411423 https://www.gopetition.com/signature/locate/21411376?utm_medium=rss Tue, 13 Jun 2017 07:14:39 UTC 21411376 https://www.gopetition.com/signature/locate/21411339?utm_medium=rss Tue, 13 Jun 2017 07:01:14 UTC 21411339 https://www.gopetition.com/signature/locate/21411305?utm_medium=rss Tue, 13 Jun 2017 06:49:53 UTC 21411305 https://www.gopetition.com/signature/locate/21411295?utm_medium=rss Tue, 13 Jun 2017 06:45:06 UTC 21411295 https://www.gopetition.com/signature/locate/21411275?utm_medium=rss Tue, 13 Jun 2017 06:36:30 UTC 21411275 https://www.gopetition.com/signature/locate/21411241?utm_medium=rss My friend Lexi Hass is very brave. She got DBS at seven years old, and she was the first pediatric patient to get this treatment. I have seen the effects of Lexi's second DBS implant, and it has very much improved her quality of life. She has made great progress. However, Lexi needs a doctor to help manage her DBS and her kernicterus, so that she can reach her highest potential. I believe that Lexi will be able to communicate independently someday and get a secondary education at a prestigious university. Lexi's mind and heart are gifts to the world, but she needs care in order to use her gifts.

]]> Tue, 13 Jun 2017 06:17:49 UTC 21411241 https://www.gopetition.com/signature/locate/21411236?utm_medium=rss Tue, 13 Jun 2017 06:14:01 UTC 21411236 https://www.gopetition.com/signature/locate/21411190?utm_medium=rss Tue, 13 Jun 2017 05:52:36 UTC 21411190 https://www.gopetition.com/signature/locate/21411184?utm_medium=rss Tue, 13 Jun 2017 05:48:48 UTC 21411184 https://www.gopetition.com/signature/locate/21411169?utm_medium=rss Tue, 13 Jun 2017 05:44:23 UTC 21411169 https://www.gopetition.com/signature/locate/21411167?utm_medium=rss Tue, 13 Jun 2017 05:43:25 UTC 21411167 https://www.gopetition.com/signature/locate/21411153?utm_medium=rss Tue, 13 Jun 2017 05:36:01 UTC 21411153 https://www.gopetition.com/signature/locate/21411147?utm_medium=rss Tue, 13 Jun 2017 05:32:32 UTC 21411147 https://www.gopetition.com/signature/locate/21411129?utm_medium=rss Tue, 13 Jun 2017 05:23:59 UTC 21411129 https://www.gopetition.com/signature/locate/21411125?utm_medium=rss Tue, 13 Jun 2017 05:21:26 UTC 21411125 https://www.gopetition.com/signature/locate/21411114?utm_medium=rss He has provided wonderful care top Maddy

]]> Tue, 13 Jun 2017 05:16:03 UTC 21411114 https://www.gopetition.com/signature/locate/21411102?utm_medium=rss Tue, 13 Jun 2017 05:08:21 UTC 21411102 https://www.gopetition.com/signature/locate/21411086?utm_medium=rss Tue, 13 Jun 2017 04:56:18 UTC 21411086 https://www.gopetition.com/signature/locate/21411078?utm_medium=rss Tue, 13 Jun 2017 04:54:42 UTC 21411078 https://www.gopetition.com/signature/locate/21411054?utm_medium=rss This is truly odd. I have a medical field background and it is astonishing that he is not allowed to be hired in this area and are not replacing him. Oviously these patients need therapy. Please replace him immediately or hits someone to take his place and have such a bed side manner and caring heart like he did.

]]> Tue, 13 Jun 2017 04:46:51 UTC 21411054 https://www.gopetition.com/signature/locate/21411053?utm_medium=rss Tue, 13 Jun 2017 04:46:48 UTC 21411053 https://www.gopetition.com/signature/locate/21411051?utm_medium=rss It saddens me when people don't do what is right for the kids....there is no reason why this doctor shouldn't be allowed to continue to help his kids, if he didn't do anything wrong.

]]> Tue, 13 Jun 2017 04:45:40 UTC 21411051 https://www.gopetition.com/signature/locate/21411012?utm_medium=rss Tue, 13 Jun 2017 04:31:28 UTC 21411012 https://www.gopetition.com/signature/locate/21411008?utm_medium=rss Tue, 13 Jun 2017 04:30:03 UTC 21411008 https://www.gopetition.com/signature/locate/21410983?utm_medium=rss Tue, 13 Jun 2017 04:21:43 UTC 21410983 https://www.gopetition.com/signature/locate/21410981?utm_medium=rss Tue, 13 Jun 2017 04:21:17 UTC 21410981 https://www.gopetition.com/signature/locate/21410966?utm_medium=rss Tue, 13 Jun 2017 04:15:25 UTC 21410966 https://www.gopetition.com/signature/locate/21410935?utm_medium=rss Tue, 13 Jun 2017 04:06:24 UTC 21410935 https://www.gopetition.com/signature/locate/21410875?utm_medium=rss Tue, 13 Jun 2017 03:46:14 UTC 21410875 https://www.gopetition.com/signature/locate/21410830?utm_medium=rss My son Zachary Dornbos has also seen Dr Albers once and we were considering coming back down this summer but heard he was no longer there. The importance in having the same provider for these kids can't be stressed enough. Not only does it alleviate repeating their extensive medical history, but the provider knows the kids, their bodies, how to work with them, their personalities and how. Eat to approach what needs to be done. Kids with kernicterus are not your typical patients and until you've met them and worked with them you can't possibly know what a difference someone who understands like Dr .Albers makes.

]]> Tue, 13 Jun 2017 03:34:09 UTC 21410830