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Petition Tag - multiple sclerosis

1. Free Hamed Rouhinejad

After the election and the eruption of widespread anti-government protests, through intimidation and false promises, Iranian student Hamed Rouhinejad was forced to plead guilty in a show trials which resulted in issuing a death penalty by branch 28 of the Revolutionary Court. According to his father, Rouhinejad was initially charged with spreading propaganda against the Islamic Republic. At his trial, he was accused of membership in the Association of Iran's Monarchy.

Rouhinejad has denied the charges. On Jan 2010 the death sentence of Hamed was reduced to 10 years of suspended imprisonment by the supreme court.

Hamed suffers from multiple sclerosis, and is in critical condition in Zanjan prison, northwestern Iran, where he is being held in solitary confinement. He has been denied visits and phone calls.

On Oct 19 2010 his father in an interview with radio farda said I visited Hamed 3 weeks ago on that occasion "He was in very poor health, physically and mentally."

He added that physicians at Evin prison and Imam Khomeini hospital have said that Hamed should be released from jail for at least three months for medical treatment, but neither the judge, nor the prosecutor agreed to that.

When he was transferred from Tehran to Zanjan, Hamed’s health deteriorated considerably due to lack of medical care. He is now at serious risk of dementia and death.

His Father added : I ask from all internal and international organizations, the Secretary-General of the UN, and Doctors without Borders to please examine my son’s situation. If they conclude that my son can endure being in prison under these conditions, there will be no objection. But anyone who sees Hamed just for a few minutes knows that he will not survive these conditions. I don’t believe my child will survive another month.

The barbaric human rights violations carried out by the Iranian regime cannot be allowed to continue.

Please do not stand by. Please sign this petition.

Hamed Facebook Page:
http://on.fb.me/99MibR

News Sources:

http://www.rferl.org/content/Iranian_Father_Worried_For_Jailed_Sons_Health/2194687.html

http://persian2english.com/?p=15308

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2. URGENT!! Save the Life of Hamed Rouhinejad! Young Political Prisoner Dying From NO TREATMENT for his Multiple Sclerosis!!!

Hamed Rouhinejad is a young man in Iran who was arrested in May 2009, 40 days BEFORE the presidential elections in June, for leaving the country to work even though he was given permission upon returning.

Hamed is currently in SOLITARY CONFINEMENT.

Please read my previous petition for him so that you can understand all of the suffering he has been through during this past year - from threat of EXECUTION to a reduction of receiving 10 years in jail and exile.

http://www.petitiononline.com/hamedjan/petition.html

With Hamed having Multiple Sclerosis and being in prison without treatment, which authorities refuse to allow, he will die anyway from his continuous deteriorating health every day that he remains behind prison walls.

THE GOVERNMENT OF IRAN IS RESPONSIBLE FOR THE LIFE OF HAMED ROUHINEJAD.

Please read the following exerpt of an interview with Hamed's father who has been desperately trying get help, pleading for someone to be able to save his son's life:

The family of Hamed Rouhinejad, the jailed Iranian student with Multiple Sclerosis (MS), has written numerous letters to various judicial officials like the Tehran Prosecutor and the judge on their son’s case. Officials are aware of Hamed’s deplorable condition, but no one has yet secured him a temporary medical prison leave. Hamid is currently held in exile in Zanjan prison where a medical facility is practically nonexistent.

The paralysis is spreading throughout Hamed Rouhinejad’s body. He has also lost 50% of his eye sight and hearing. He needs to be under immediate medical supervision. The Jaras website has conducted an interview with Hamed Rouhinejad’s father about his son’s most current condition:

Jaras: Mr. Rouhinejad, please tell us about your son’s latest condition?

Father: About three weeks ago I was finally able to visit him after begging the officials. He was in a very bad physical and emotional state. The MS disease that Hamed suffers from has caused him retinal and stomach problems. He even has difficulty passing urine.

His eyesight has also weakened. He told me that he is suffering from hearing impairment and his memory is not sharp anymore. He even told us to stop bringing him ampules and medicines for his injections, because time in solitary confinement has made the injections lose their effect.

The emotional pressures and stresses are causing my health to deteriorate. We told him to use the ampules for now and that God will help [him] and [his] problems will be resolved. Unfortunately, we have no more news of his condition. He is banned from receiving visits, and he does not even have the right to make phone calls. No official I have gone to has provided any convincing answers. They all say that the order is a judicial one and they are just following it.

Jaras: Do they not explain the reasoning behind the phone calls and the visit bans?

Father: Nobody replies [to our requests]. I went to the Zanjan Prosecutor, but he did not respond. I went to the Director General, but he had no convincing response either so he told me to go to Tehran. I went to the Tehran Ministry of Justice. They stated that they have no information and we need to go to the Tehran Prosecutor’s office [belonging to Abbas Jafari Dolatabadi]. He has not given us a response or agreed to see us. We went to the Supreme Court [or he may mean the the Court of Public Services Justice that is responsible for hearing the grievances of citizens against public offices], they told us to ask our son to write a grievance. We asked how someone who has no visitation rights can write a grievance. They repeatedly responded that they did not know. Unfortunately, nobody is taking responsibility and responding to us. In my view, they have the intention of either killing my son or handing him to us completely paralyzed.

Jaras: How is the medical care in prison?

Father: The only thing they did was take our son to Valiasr hospital in Zanjan. The doctor examined him and prescribed salexy [?] for injection. He has received it, but it had no effect since he is held in solitary confinement and he is under psychological pressure. MS is a disease that shows an increase in physical problems as the stress and distress increases. All the authorities are aware of this fact and yet they act in such a hostile manner.

Jaras: What is the status of his legal case?

Father: My son is now in Zanjan prison serving a ten-year sentence. He calls the prison a camp. He is currently held in solitary confinement. He has no visitation rights. They tell us that they will contact us so I don’t know when that will be; it could be one month, two months, six months, ten months…I don’t know.

Jaras: Given that he is serving a prison sentence, receiving visits and making phone calls are considered legal prisoner rights. Have you taken any steps in securing these rights?

Father: Wherever we go for these matters, they tell us they are acting as proxies and are just following orders. When we ask them to show us the order, the tell us to go for now, and they will let us know.

Jaras: If you have anything to say to authorities, here is an opportunity for them to hear your voice.

Father: I have said many times that the Leader of the Revolution has taught us that Islam is the religion of compassion and forgiveness. Which part of all the pain they impose on my son is compassion? Mr. Ahmadinejad, you speak of justice, justice, justice. Is it just and fair that you take a sick kid of whose problems you are aware to solitary confinement and ban his visitation rights? If this is justice, where is the injustice then? Chief of the Judiciary, tell us if this is justice, where is the injustice then? My son, with all his physical problems, is held in solitary confinement. And if the pressures continue, he can perish. Tell me, where is the real justice? This is not justice and fairness. You did not do justice to us and you did not administer it, and you will not do it. Intelligence officials who are hearing my voice right now, I swear to Fatemeh Zahra [Prophet Mohammad's daughter] to let the President and the Supreme Leader hear my voice so the doors of mercy may be open to us.

Jaras: Do you think that the Leader and Mr. Ahamadinejad are not aware of the prisons conditions?

Father: I don’t know, maybe, if the Intelligence officials who are hearing my voice let them know. If they are aware of the conditions, it is up to them and their God. I just implore them to investigate my son’s unfit condition. My son is ill and he is dying.

I had two partial strokes and suffer from back disc and heart conditions. Hamed’s sister and brother have developed nervous disesaes due to Hamed’s situation. In other words, all five members of my family are perishing. I travel the distance between Zanjan and Tehran, despite my physical ailments, but no official is providing me with any answers. You who claims to be pursuing justice, uphold justice and save my son from his gradual death.

My last word is that the President, the head of the Judiciary, the parliament speaker, and all the offiicals who are hearing my voice, wherever we go and on whatever door we knock, nobody responds to us. They have the intent to murder my son. I swear to God that they have intended to kill my son or render him paralyzed. I swear you to the verses of the Holy Qur’an that if you are a Muslim, if you have faith, don’t impose this slow and painful death on my son. Help his condition.

Source: http://persian2english.com/?p=15580

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3. OHIP to fund Out of Country CCSVI Treatments for Multiple Sclerosis

Still in the early stages, a theory of Dr. Zamboni's, if proven and accepted by the medical community, may provide new life to millions of MS patients around the world. A report on W5, on CTV in Canada, reports that Dr. Zamboni has relieved the symptoms of some MS patients by treating a vein condition found in the neck and upper chest.

Dr. Zamboni's Liberation Treatment: Dr. Zamboni reported in the interview that he has found that some patients' veins that transport blood from the brain are twisted and blocked. This also may cause blood to flow backwards into the brain, depositing high levels of iron. Deposits of iron can be toxic in the brain and may set off a series of immune reactions leading to MS.

Chronic Cerebrospinal Venous Insufficiency (CCVI), as Dr. Zamboni has termed his findings, can be treated using "The Liberation Treatment." It involves a procedure similar to that used to repair coronary arteries in angioplasty.

Dr. Paolo Zamboni Offers Hope to MS Patients: New Findings About Possible Cause of Multiple Sclerosis http://www.suite101.com/content/dr-paulo-zamboni-offers-hope-to-ms-patients-a172795#ixzz11317yfnv

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4. Walk to Save Multiple Sclerosis (MS) Respite Centres

I strongly disagree with the decision by the Multiple Sclerosis (MS) Society to withdraw funding from the UK's four dedicated MS Respite Centres.

Because of these threatened closures I will be walking 260 miles from the Woodlands Respite Centre in York from Friday 10th September 2010 to Leuchie House in East Lothian, arriving there on Sunday 19th September 2010 at around mid-day. I am inviting you to join me!

'Save MS Respite’ Petitions (available from www.walktosavemsrespite.com) will be collected from the numerous pre-designated points along the journey. On the 20th September, the walk will continue to the Scottish Parliament in Edinburgh to personally hand over the petition sheets to an allied MSP member.

I hope to get some media coverage both along the trip and at the start/final destinations. I will also utilise my group on facebook ‘Walk to Save MS Respite 10/09/2010' and up-to-date blogs on both www.walktosavemsrespite.com and www.savemsrespite.com to keep people in touch with the progress of the walk, along as posting the location and date of each section of it, allowing people to join me at any time and bring along any petitions they have collected themselves.

My father, who has MS, has visited Woodlands many times over the years. He has made good friends with both staff and other guests and times his visits now to meet up again. A couple of years ago my parents where lucky to find out about Leuchie House in Scotland which is the only MS respite centre offering holidays for both the MS sufferer and their carers/family. They have had a couple of wonderful holidays together and met some fantastic people.

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5. C.C.S.V.I. Screening and Interventional procedures for Irish M.S. Patients

A petition to have unbiased screening for C.C.S.V.I. for people with M.S. in Ireland. Upon confirmation of C.C.S.V.I., that intervention be provided by the Irish health system in an expedited manner.

contact: multiplesclerosispatients@gmail.com for further information.

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6. Research Possible Multiple Sclerosis Cures

Canada needs to recognize the merit behind the findings to support the possibilities of a cure for Multiple sclerosis. 240 out of every 100,000 people in Canada is diagnosed with this debilitating disease.

Most people are between 20-40 years if age when diagnosed and will be bound to a wheelchair within 20 years of finding out they have it.

Please help support our search for a cure and show that there is an interest in saving friends and family from the pain and suffering!

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7. Multiple Sclerosis - CCSVI & The Liberation Treatment

A citizen's Human Rights represent the ill as well as all man kind and the right to have medical treatment when suffering from an illness.

CCVSI is the malformation/blockage or thinning of veins in ones neck which causes blood-flow restriction - which in turn may be the newly-found cause of the frightening, and debilitating disease of M.S.

This highly important hypothesis has unimpressed the British medical establishment whom have been showing themselves to be a semi-interested group of negative and disinterested doctors whom are openly displaying their arrogant scepticism.

These paramount findings were recently proven by Italian doctor, Dr Zamboni; astonishingly there have been miraculous results for patients whom have undergone a relatively minor surgical procedure called ‘The Liberation Treatment’. This means that for decades the 'cause' for the onset of MS - which has been unknown - has been to all intents and purposes been understood - thus now finding a potential solution.

By implanting a 'stent' in the narrowed/damaged neck veins allowing better blood-flow to the brain, Dr Ziamboni has literally elivated M.S. symptoms in hundreds of patients. However, he stresses that not all patients can be offered the same results. Nevertheless, if 20% or 10% of sufferers benefit from this treatment it will be worth while. But where?

The active and researching doctors are in Canada, the US, Poland and Italy. Their results have been on the BBC News - all over the internet and is huge in the medical world - why then have we not received support for our country - Why indeed isn't the MS Society providing funding to establish support for CCSVI examination and or sufferers and the liberation operation?

Shouldn't the patient have the right to ask, and receive the appropriate MRI examination on their neck to see if they have CCSVI, and then have the simple and quick operation which can liberate their life - if they have this issue? It should be part of the examination and tests for the initial diagnosis. Caught at an early stage one has a better chance.

There is however, a centre being set-up in Glasgow (now I am sceptical) for CCSVI examinations which will cost the patient between £200 & £300 – but what if patients whom are too ill to travel to Glasgow, and patients whom do not have the money can not pay. I complain not - at least it is a start.

Please help those whom feel life is not worth living ,when it could simply be down to the simplicities explained in my plea for help - let patients get their treatment on the National Health and as soon as possible they are running out of time.

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8. We Want The MS Society To Use Our Money To Fund CCSVI Research

I am confident that this could be a revolution for the research and diagnosis of multiple sclerosis ”— Dr. Paolo Zamboni.

If there is a possiblity that MS can be cured this procedure should be looked into. This experimental surgery Dr. Zamboni performed on his wife offers hope that MS, which afflicts 2.5 million people worldwide, can be cured and even largely prevented.

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9. Getting NationalmsSociety.org on Socialvibe

Multiple sclerosis (or MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision.

The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. Today, new treatments and advances in research are giving new hope to people affected by the disease.

Please help me get this cause on Socialvibe. I just need one hundred signatures. My grandfather died from this when I was four years old. You would be helping many people. And the money would be going towards nationalmssociety.org for research. Thank you!

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10. Comprehensive Medicare cover for complementary and integrative healthcare

The introduction of mental health plans and Enhanced Primary Care (EPC) under Medicare have been great steps forward in public health.

Currently, only some healthcare providers (dentists, physiotherapists, chiropractors, osteopaths and podiatrists) are able to register as allied health professionals to provide a limited number of treatments as part of an Enhanced Primary Care plan provided by a GP.

People who are chronically ill tend to be the ones who benefit most from complementary healthcare, but can least afford it.

Wellbeing should not be reserved for the well-off.

Australia could become a world leader in public wellbeing by not only providing dental health cover, but also complementary and integrative healthcare under Medicare.

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