Petition Tag - group

I had a son who was diagnosed with multiple birth defects and who spent the first 10 months of his life in the hospital. The doctors gave me little information, and in terms that I didn't understand and they didn't refer my family to a support group or other knowledge bank. I felt alone and helpless. Most people who have been diagnosed with medical problems or people with family members who have been diagnosed with medical problems encountered the same problem that I did-- lack of information, no referrals for a support group, no one to turn to who could answer your questions. How many of you didn't find a support group until years later, if at all? How many of us stayed up until 3 a.m. searching the internet for information? How much difference would it have made in your child's care and outcome if you had that information and support? How much difference would it have made to your sanity if you knew that you weren't the only one going through all that you or your family member's medical problems has put you and your family?

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