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Raise Budgets for Funding to go towards Research for Children with Rare Chromosome Disorders
Published by Christine M. Leonzal on Nov 02, 2009
66 Signatures 
|
Target: Senator Al Franken
Region: United States of America
Web site: http://www.chromodisorder.org
Background (Preamble):
Thousands of our children everyday are going misdiagnosed for what are really Rare Chromosome disorders because there is not enough research to know better.
No one knows any answers simply because there aren't any. No past track record to learn from, no clinical research, prognosis, cure or even life expectancy.
So Rare, many of these children are suffering from diseases without even names.
Budgets lack funding for chromosome research simply because the research is so expensive.
No one knows any answers simply because there aren't any. No past track record to learn from, no clinical research, prognosis, cure or even life expectancy.
So Rare, many of these children are suffering from diseases without even names.
Budgets lack funding for chromosome research simply because the research is so expensive.
Petition:
Please, let today be the day you speak out for the voices of children too little or too weak to be heard.
Like my son Triston and the other millions globally.
Promote awareness for Rare Chromosome Disorders & studies in children , so that another child today - doesn't go over looked tomorrow.
Urge your congressman and congress women today to stand in the fight to raise budgets for funding to go toward research for rare diseases.
To save a small life today, by what we knew yesterday - will keep our future of man kind in existence.
BE A CHILD'S ADVOCATE TODAY! PLEASE SIGN TODAY AND SAVE MILLIONS OF LIVES!
Al Frankin - Please raise the budgets for funding to go towards research for children suffering from Rare Chromosome Disorders.
For more information on Rare Chromosome Disorders and how you can further help, please visit Chromosome Disorder Outreach (CDO) at www.chromodisorder.org
Like my son Triston and the other millions globally.
Promote awareness for Rare Chromosome Disorders & studies in children , so that another child today - doesn't go over looked tomorrow.
Urge your congressman and congress women today to stand in the fight to raise budgets for funding to go toward research for rare diseases.
To save a small life today, by what we knew yesterday - will keep our future of man kind in existence.
BE A CHILD'S ADVOCATE TODAY! PLEASE SIGN TODAY AND SAVE MILLIONS OF LIVES!
Al Frankin - Please raise the budgets for funding to go towards research for children suffering from Rare Chromosome Disorders.
For more information on Rare Chromosome Disorders and how you can further help, please visit Chromosome Disorder Outreach (CDO) at www.chromodisorder.org
The Raise Budgets for Funding to go towards Research for Children with Rare Chromosome Disorders petition to Senator Al Franken was written by Christine M. Leonzal and is in the category Health at GoPetition. Contact author here. Petition tags: children, reasearch, chromosome, genetics, rare
