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High Profile Campaign To Raise Government Awareness & Funding of Children's Neuroblastoma Cancer
Published by Gen Chamblee on Apr 05, 2011
1295 Signatures 
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Target: 1600 Pennsylvania Avenue NW
Region: United States of America
Web site: http://www.sierrarayn.org
Background (Preamble):
Neuroblastoma is one of the most aggressive forms of childhood cancer; after domestic accidents, cancer is the second most frequent cause of death in children.
It is the single most common type of cancer in infants and the 3rd most common type of cancer in children. However, very few people have ever heard of it and most do not know the signs and symptoms.
This means that although symptoms may have been present in the child for some time, in over 75% of children, the diagnosis is not made until the disease has metastasized and reached stage IV, the final stage. Prognosis for this group is very grim, offering a 30% chance of survival.
In contrast, children diagnosed in the early stages have up to a 95% chance of survival.
Treating a child who has stage IV neuroblastoma costs an average of $976,860 in the first year alone. 600-1000 kids a year are diagnosed with neuroblastoma in the US every year.
It is the single most common type of cancer in infants and the 3rd most common type of cancer in children. However, very few people have ever heard of it and most do not know the signs and symptoms.
This means that although symptoms may have been present in the child for some time, in over 75% of children, the diagnosis is not made until the disease has metastasized and reached stage IV, the final stage. Prognosis for this group is very grim, offering a 30% chance of survival.
In contrast, children diagnosed in the early stages have up to a 95% chance of survival.
Treating a child who has stage IV neuroblastoma costs an average of $976,860 in the first year alone. 600-1000 kids a year are diagnosed with neuroblastoma in the US every year.
Petition:
We, the undersigned, are petitioning you, our Government, to take reasonable preventative measures - in the form of education, funding and awareness of the signs and symptoms of neuroblastoma.
High profile awareness campaigns, such as that for SIDS, Austism and MS, have dramatically increased lives through alerting the public to danger signs. The same would be true for neuroblastoma.
We are requesting a Government funded awareness campaign to educate the public to recognize the signs and symptoms of neuroblastoma, and empower parents and Doctors to adopt a policy of early testing.
In addition to this, we request that strict guidelines be placed on US organizations who label neuroblastoma as rare, contradicting major worldwide neuroblastoma organizations.
The public says it will not stand by and watch children die from a simple lack of education and awareness.
The public also says that in the current economy, they demand better use of public money in combating this disease and savings children's lives.
High profile awareness campaigns, such as that for SIDS, Austism and MS, have dramatically increased lives through alerting the public to danger signs. The same would be true for neuroblastoma.
We are requesting a Government funded awareness campaign to educate the public to recognize the signs and symptoms of neuroblastoma, and empower parents and Doctors to adopt a policy of early testing.
In addition to this, we request that strict guidelines be placed on US organizations who label neuroblastoma as rare, contradicting major worldwide neuroblastoma organizations.
The public says it will not stand by and watch children die from a simple lack of education and awareness.
The public also says that in the current economy, they demand better use of public money in combating this disease and savings children's lives.
The High Profile Campaign To Raise Government Awareness & Funding of Children's Neuroblastoma Cancer petition to 1600 Pennsylvania Avenue NW was written by Gen Chamblee and is in the category Education at GoPetition. Contact author here. Petition tags: neuroblastoma, cancer, treatment, stage, childhood cancer, awareness, funding, education, signs, symptoms, chemo, diagnosis, stem cell, radiation
